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Welcome to FNMS Online
Foundation for Nager and Miller SyndromesThe Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe facial and limb anomalies, but do not usually affect intellect. These syndromes often affect one's ability to see, hear, breath, eat, walk, talk and write. FNMS serves as an information clearing house to help educate families and professionals about Nager and Miller syndromes. FNMS' extensive library of resources and medical reports on these rare conditions are available by request. Challenged families join the FNMS network for support, referrals and sharing of helpful experiences. |
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Genetic ResearchMiller Syndrome Gene Discovered!Nager & Miller Syndrome Research ProjectsThe Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing... |
Utra Mini Triathlon in Marathon!FNMS is pleased to announce the Beranek Family will once again host the Ultra Mini-Triathlon in Marathon, Wisconsin. The Race, benefiting FNMS will be held on Saturday June 11, 2011. Registration opens at 6:45 AM and the Athlete's portion of the race starts at 7:30 AM, followed by the Novice & Family race at 9:00 AM. This year, supporters that would like to participate online can join in the Virtual Triathlon. Forms for tracking virtual times and further information is available at www.ultramini.org |
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